young

onset

parkinson’s

disease

patient & advocate

“With gratitude, optimism is sustainable. If you find something to be grateful for, then you have something to look forward to.”
— Michael J. Fox
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Essay in Arlington Magazine

Interview with Katie Couric

Blog

Still Allie Blog
This Is My Fight Song
This Is My Fight Song
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A Letter to Me…Or You.
A Letter to Me…Or You.
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Becoming Disabled
Becoming Disabled
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Complicated Gratitude
Complicated Gratitude
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“It’s Not Funny, Allie”
“It’s Not Funny, Allie”
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Life Lately
Life Lately
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An End to the Selfie Era
An End to the Selfie Era
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The Art of Being Vulnerable 
The Art of Being Vulnerable 
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Everything Happens For A Reason…Or Does It?
Everything Happens For A Reason…Or Does It?
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The Gift of a Life’s Sentence
The Gift of a Life’s Sentence
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An Ode To Buddy
An Ode To Buddy
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To My Kids On Mother’s Day
To My Kids On Mother’s Day
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Being Present and Other Impossible Tasks
Being Present and Other Impossible Tasks
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In Defense of Being Soft
In Defense of Being Soft
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My Parkinson’s Diagnosis Story
My Parkinson’s Diagnosis Story
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It’s me. Hi, I’m the problem. It’s me.
It’s me. Hi, I’m the problem. It’s me.
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Join Our Community on Instagram @imstillallie

🥶 Went to bed and work up to WINTER you guys. BRRRRR!!! How did it get so cold so fast? I have come to strongly dislike the cold – which is weird considering I was born in Toronto, grew up in the northeast, went to college outside of Chicago a
I can’t sleep because Trevor is in high gear, so while I lie here deciding whether to take an extra dose, here are some glamor shots of Bean’s Christmas collar complete with tartan bow. Is there anything on the planet that gets more love
Two years ago tonight, I went to sleep knowing it might be the last time I existed on this planet without the descriptor Young Onset Parkinson’s patient before or after my name. It had been four years since my first symptom, three weeks since m
Wait….trying on your wedding dress that’s been a box in your parents basement ever since your wedding 25 years ago right after Thanksgiving dinner isn’t what we all did yesterday!? So odd….I thought that was just a thing we
Ok one last gala post I promise (jeezzzz enough Allie..we get it 🙄🙈) but these pics deserve a spot on the grid (as the kids say). And also because I need future proof that I not only got to know @katiecouric in my lifetime (thanks to @abrevayasandr
Well, you guys…the time has come to finally accept the fact that I am turning 50 in about five weeks. On December 28th to be exact. ACK! 😳🙈 👵🏻   To help me get to a place of peaceful acceptance of this milestone, I’ve decided to
A Monday evening thought: On the day of my diagnosis, through snotty tears, I asked I my neurologist how she thought I got it. She gently told us that there was no way to know at that point – it could be genetic, or possibly environmental or li
Seeing @stevienicks sing live at the @michaeljfoxorg gala on Saturday will go down as one of the highlights of time on this planet. Her music has been a part of the entirety of my life and it took every ounce of my self composure to not sob during La
Last night as we were sitting outside the gala waiting for our Uber, I was thinking about how surreal it is to attend an event of that scale and magnitude that is solely dedicated to ending the disease you have. It is humbling to see the emotion an
If this was Parkie Prom, I totally think we’d get at least one vote for King and Queen right? 😝 My bag would definitely win though because she was the cutest thing there by far. 💕 More pics and full deets coming soon! #foxgala #mjff