young

onset

parkinson’s

disease

patient & advocate

“With gratitude, optimism is sustainable. If you find something to be grateful for, then you have something to look forward to.”
— Michael J. Fox
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Essay in Arlington Magazine

Interview with Katie Couric

Blog

Still Allie Blog
This Is My Fight Song
This Is My Fight Song
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A Letter to Me…Or You.
A Letter to Me…Or You.
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Becoming Disabled
Becoming Disabled
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Complicated Gratitude
Complicated Gratitude
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“It’s Not Funny, Allie”
“It’s Not Funny, Allie”
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Life Lately
Life Lately
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An End to the Selfie Era
An End to the Selfie Era
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The Art of Being Vulnerable 
The Art of Being Vulnerable 
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Everything Happens For A Reason…Or Does It?
Everything Happens For A Reason…Or Does It?
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The Gift of a Life’s Sentence
The Gift of a Life’s Sentence
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An Ode To Buddy
An Ode To Buddy
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To My Kids On Mother’s Day
To My Kids On Mother’s Day
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Being Present and Other Impossible Tasks
Being Present and Other Impossible Tasks
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In Defense of Being Soft
In Defense of Being Soft
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My Parkinson’s Diagnosis Story
My Parkinson’s Diagnosis Story
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It’s me. Hi, I’m the problem. It’s me.
It’s me. Hi, I’m the problem. It’s me.
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Join Our Community on Instagram @imstillallie

I don’t subscribe to the concept of toxic positivity. Life is freaking hard. Watching others struggle - no matter what they are dealing with - is hard. Watching strangers battle and maybe even die from the disease you currently have, or anoth
There really are no words for how much I love this human. He literally put out fires (plural) this week to save our house while I ran around screaming. I’m dramatic but he is calm. I am wild when he is measured. I am funny and he’s my gho
Flash back to two weeks ago when my highest source of stress was not being able to snap well because of PD. Or because I was never good at snapping to begin with? Who knows!! Either way, I’m bad at snapping which is a minor inconvenience for su
What I’ll remember about the summer of ‘24 was the difference in how I felt as it started vs. how I feel now at the end. June was really hard. I don’t think I’ve ever been in such a dark place. I cried off and on all day. Sp
Foot dystonia in the wild 😜 😩 The lake is always a good idea though…. 🚤🐟☀️
I’m positive! No…not Covid.😉 And no, not talking about my (currently) good attitude. In this case, I once again tested positive for a UTI, which I’m pretty sure is my one millionth this year. Feels like I should get a free ice
Tomorrow is Bobby’s last first day of school…so here’s his first first day. 😩 I’m fine. Everything’s fine. Nothing to worry about. Bless my heart. 🥹 #how #why #timeisathief❤️ #smallerthanhislunchbox #senioryear
No one panic! I’m not preggers. I’m almost 50 y’all. 😂 Deep breaths but, story time on this Sunday evening with point at the end, I promise!! 8 years ago tonight, we were driving south on the Jersey turnpike. We had just left my i
I have a thing for stairs. And for my hubs obvi cuz he’s so dang cute 😋 but that’s not the point of this post. Ha ha! Throwback to when we went to FL in April for a bit of sun and for Dr. Isaacson’s team to drain me of all my bloo
Happy, Happy 54th Anniversary to my beautiful parents, Bob and Geri! Besides being super models (swipe) they have been unfailingly supportive and generous- especially these last few years when we needed them most. WE LOVE YOU!! ❤️ 🥂🍾💒💍👰🏻🤵🏼&